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Three days home and we are sleepy! Daniel is on a feeding schedule. He has to have a bottle every 3 hours – 12:00, 3:00, 6:00, 9:00, 12:00 and so on. He gets “Mommy food,” but I have to add formula to the milk to add calories. Andy has done such a great job with the feedings that we haven’t had to use the feeding tube since we’ve been home!
Last Friday, when Daniel was discharged, we were unable to have his “little boy surgery” done – we probably wouldn’t have gotten home until midnight if we would have waited for it to be done. We did dress him up in the cutest outfit and he of course puked all over himself right as we were getting in the car. We were SO glad to be heading home that it didn’t matter.
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We have appointments with a pediatrician on Thursday and his cardiologist on Friday. We’re hoping that the feeding tube will be able to come out. The oxygen is an interesting thing. We have a huge green tank in the middle of the living room and 75 feet of plastic tubing. We have no idea how long he’ll have to be on the oxygen or the feeding schedule.
We are sleepy and the days just seem to fly by. Daniel is amazing though! He is becoming more alert every day. He is currently laying in Andy’s lap and just staring up at him. When we were in the hospital all he did was sleep, so we are seeing changes in him already!
The best thing for us all is being home. I am feeling so much better. We are starting to get into a routine, thanks in part to the feeding schedule. We truly appreciate all of the cards and gifts that greeted us when we got home. I have a ton of emails and will try to respond to them as soon as possible - just know that we appreciate all of the well wishes!
We have been so overwhelmed by the generosity of our family and friends. We don’t know how we are going to thank you all. Please know that we are praying for you as well.
Blessings!
Last Friday, when Daniel was discharged, we were unable to have his “little boy surgery” done – we probably wouldn’t have gotten home until midnight if we would have waited for it to be done. We did dress him up in the cutest outfit and he of course puked all over himself right as we were getting in the car. We were SO glad to be heading home that it didn’t matter.
We have appointments with a pediatrician on Thursday and his cardiologist on Friday. We’re hoping that the feeding tube will be able to come out. The oxygen is an interesting thing. We have a huge green tank in the middle of the living room and 75 feet of plastic tubing. We have no idea how long he’ll have to be on the oxygen or the feeding schedule.
We are sleepy and the days just seem to fly by. Daniel is amazing though! He is becoming more alert every day. He is currently laying in Andy’s lap and just staring up at him. When we were in the hospital all he did was sleep, so we are seeing changes in him already!
The best thing for us all is being home. I am feeling so much better. We are starting to get into a routine, thanks in part to the feeding schedule. We truly appreciate all of the cards and gifts that greeted us when we got home. I have a ton of emails and will try to respond to them as soon as possible - just know that we appreciate all of the well wishes!
We have been so overwhelmed by the generosity of our family and friends. We don’t know how we are going to thank you all. Please know that we are praying for you as well.
Blessings!
3 comments:
I am soooo happy to hear that things are going well :) those are great pictures of him with his eyes open :) I hope that the doctor visits coming up bring even more good news! Gerrad and i just got a puppy, so we are experiencing getting up in the middle of the night to a crying puppy...hoping that doesn't last too long! hopefully you will find out that you can drop one of those middle of the night feedings!!!
Beth & Andy,
So glad to get an update and see some more pictures of your tiny little gift!
Joshua is 8 1/2 months old and teething so our nights are still filled with getting up every few hours or so to listen to him calm himself back to sleep, to offer him some sustenance, change a diaper, apply some anbesol, etc.
When I became a parent, it was so earth-shattering for me in a good way. I knew I would never ever not be a parent and would always be concerned about another person who, at one time, was a part of me. The gravity of it all hit hard for months and then...I began to enjoy it all.
It is a huge transition and adjustment. Please give yourself a lot of time and patience to see it through. When he is 3 1/2 years old, you will wonder where the time went...and ask yourself holding up that outfit he came home from the hospital in..."did he really fit into that?"
Blessings on everyday. We continue to hold you in our every prayer.
So glad to hear you are home! Daniel is doing amazing! Hopefully his check up on Thursday will bring the removal of the feeding tube and some weight gain! I am also very thankful to hear you are doing better Beth.
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