Six Weeks Old

Six weeks old today – time is flying by. I get up in the morning and the next thing I know it is time to go to bed! I’ve been trying for a week to get my Christmas cards done – I guess I have two weeks left!

We have had a busy schedule. Daniel usually has at least one doctor’s appointment a week. Last week Thursday he was 8 lbs 5 oz – still a little guy, but growing.

We received notice from the state that Daniel has tested positive for congenital hypothyroidism – twice. He was tested both times during our stay at U of M. His local pediatrician reordered the test and we are still waiting on the results. Congenital hypothyroidism if untreated can cause mental retardation. If he is found to have this syndrome he will most likely have to take medication for the rest of his life – but it will have been caught early enough that he shouldn’t be affected by it. There is a possibility that he tested positive for this at U of M due to his blood transfusions during surgery. Please pray that he does not test positive for it this time.

Daniel also spent his first weekend at Nama & Papa Emmitt’s house. The mini van was packed to the gills, but we made it and had a great time!

He attended his first church service last weekend – the children’s Christmas program. It was nice being able to show him off to so many of the people that have been praying for him for all these months.

Last night he went out to dinner for the first time – to Kobe Steakhouse for Granny & Jed (they picked these names!) Kilgore’s 31st anniversary.

This afternoon I threw the travel oxygen tank over my shoulder and took Little Bear for a walk down the sidewalk. It was such a beautiful day.

One of the big differences we are noticing in Daniel is that he needs to be stimulated more and more. Last month all he needed was to be held and feed. Now he is not content with just laying in our arms. He wants to stretch out and look at things.

I have such a tough time getting anything done because I don’t like to put him down. I really have to work at getting out of the house at least once a day, otherwise I get cabin fever. I will be going back to work after the holidays, but I am blessed with the ability to work from home a couple days a week. Andy and my Mom will be watching Daniel on the days that I am not home.
Daniel has his next cardiologist appointment on the 17th. We are praying that he is able to go off his medications – two diuretics that he has to have once a day – and we pray he is able to be taken off the oxygen (he will be ready to get that thing out of his nose too - he is constantly pulling at it!). We will make sure to update you all next week with the results from the appointment!