I know that you all visit here to see the latest pictures and I apologize that there aren't any new ones. We have them, but I don't have a chance this morning to upload them.
However, our news is just as important - we're coming home tonight!
We have a long day ahead of us. Daniel has to have his "little boy surgery" yet today and be monitored for that. I also have to pass the NG tube test - which requires pushing a tubing up his nose and down into his stomach :( He hates it, but it is how he has to be fed right now.
He is also coming home on Oxygen, so those tubes are up his nose as well and we get to carry around an O2 tank with us wherever we go.
I'm nervous, even though everyone tells me that they wouldn't be sending him home 7 days after open heart surgery if he wasn't ready for us to take care of him. Please pray for our transition from the hospital to home, I would truly appreciate it!
Some of you have offered to help and cook meals for us, and if there is one thing I've learned from having this horrible emergency c-section it is that I can't turn down help! If you would like to help us out with a meal, please email my sister Sarah at srburg422@yahoo.com and she will schedule a weeknight that will work. Thank you all in advance!!
Andy is currently racing around our room at the Ronald McDonald House cleaning and packing and I can still barely move, but we're looking very forward to bringing our son home.
God Bless you all and thank you so much for saying prayers for Daniel!
Friday, November 9, 2007
Wednesday, November 7, 2007
Daniel is One Week Old
As I sit here to type, Daniel is turning exactly one week old. It is incredible to think that it has only been one week…
… and the big news is – the Surgeon told us he will most likely be able to come home THIS WEEKEND!!!!
Yes, that’s right Daniel’s prayer team – THIS WEEKEND!!
I was literally floored. I didn’t know what to do – I’ve cried WAY too much this past week (a lot of happy tears!), but this news was even beyond that.
We spent about 9 hours at the hospital today – things have changed so much. He is in a room that we can be in 24/7 and we aren’t limited to 2 people at one time and we don’t have to leave 4 times a day for the scheduled closed times.
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It is quite like home, except he is still attached to monitors, has the pacemaker wires in yet and has a 14 year old GIRL roommate :) I’m still not exactly sure how he got paired up with her.
Tonight the nurses taught us how to prepare a bottle (of “Mommy food”). We learned how to give him his medicine and feed him through the NG tube in his nose in case he has to have it when he comes home (it depends on how well he feeds).
His Emmitt grandparents and Kilgore grandma got to hold him, feed him and take turns changing diapers. I changed one myself and he even got to wear his own clothes!
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Tomorrow he will have an ECHO to see how all the fixed parts of his heart are working. Please pray for these results to come back positively.
We also ask you to say a special prayer for all of the other kids that are dealing with medical issues. Daniel has had a great recovery, but not all kids have it that way. There are even a number of children at U of M waiting organ transplants. They need your prayers as well.
… and the big news is – the Surgeon told us he will most likely be able to come home THIS WEEKEND!!!!
Yes, that’s right Daniel’s prayer team – THIS WEEKEND!!
I was literally floored. I didn’t know what to do – I’ve cried WAY too much this past week (a lot of happy tears!), but this news was even beyond that.
We spent about 9 hours at the hospital today – things have changed so much. He is in a room that we can be in 24/7 and we aren’t limited to 2 people at one time and we don’t have to leave 4 times a day for the scheduled closed times.
It is quite like home, except he is still attached to monitors, has the pacemaker wires in yet and has a 14 year old GIRL roommate :) I’m still not exactly sure how he got paired up with her.
Tonight the nurses taught us how to prepare a bottle (of “Mommy food”). We learned how to give him his medicine and feed him through the NG tube in his nose in case he has to have it when he comes home (it depends on how well he feeds).
His Emmitt grandparents and Kilgore grandma got to hold him, feed him and take turns changing diapers. I changed one myself and he even got to wear his own clothes!
Tomorrow he will have an ECHO to see how all the fixed parts of his heart are working. Please pray for these results to come back positively.
We also ask you to say a special prayer for all of the other kids that are dealing with medical issues. Daniel has had a great recovery, but not all kids have it that way. There are even a number of children at U of M waiting organ transplants. They need your prayers as well.
Blessings to you all and goodnight!
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